Lupus Organizations

I believe that whatever we are challenged by in our lives, God gave us the mechanism within us to heal it.

Lupus Organizations

Michigan Lupus Foundation Description: Support, fundraiser and membership information, and services for patients and friends in Michigan.

Lupus Foundation of Southern California Description: Assist and support community through programs, support services, and funding research. Offers directory of sites, events calendar, support group meetings, and informational pamphlets.

Bay Area Lupus Foundation Description: Provides programs, assistance and public awareness for those afflicted, and supports research for the cure and treatment. Located in San Jose, CA

Lupus Awareness Arizona Description: To help those afflicted through community education and support, as well as through supporting research.

Lupus Foundation of Greater Washington Description: Provides current information, educational programs, and outreach services to improve the quality of lives of patients, as well as supporting research.

Skin Lupus Center of New York Description: Diagnosis and treatment of skin-related disease, including Discoid, Tumid, and Subacute Cutaneous. Includes directory and a forum maintained by Dr. Andrew G. Franks.

Lupus Foundation of America Description: Resources, advocacy center, directory of local chapters, and calendar of upcoming events.

Lupus Foundation of New Hampshire Description: Support, resources and education for those afflicted in New Hampshire.

S.L.E. Foundation, The Description: Learn more about symptoms and treatment, current programs and events for patients and caregivers, ongoing research efforts, and support services.

Maryland Lupus Foundation Description: Committed to patients and their families, to increasing awareness and educating the general public and health professionals, and to funding clinical and basic scientific research.

Lupus Foundation of Western New York Description: Information and the services offered by the Western New York Chapter of the Lupus Foundation of America.

Lupus Foundation of America - Northern California Description: Sacramento chapter educating patients, promoting awareness and support, and resources for advocacy.

St Thomas' Lupus Trust Description: Offers information about the organization as well as the disease. Includes FAQs, the clinics, research, publications and journals, how you can help and contact details.

Victorian Lupus Association (Australia) Description: Provides resources including; tests and interpreting results, support services, and updates on research developments and discoveries.

Oklahoma Lupus Association Description: A non-profit organization dedicated to finding the cause and cure for lupus, and serving people with lupus, their families, and friends with information on lupus, events, projects, support groups links and contacts.

Korean Lupus Support Group Description: Information and support available to patients in Korea.

Lupus Canada Description: A primary source of information about Lupus including current research with information on the organization, membership, the immune system and extensive links.

The Lupus Foundation of Ontario Description: Information on symptoms, interactions with foods treatments, news letters and contacts.

Northwest Florida Lupus Foundation Description: Disease information, physician referral list, support group meetings and special events.

Lupus Foundation of Pennsylvania Description: Funds research, promotes awareness and provides support services for patients. Advocacy information and local events calendar.

Lupus Foundation of Minnesota Description: Dedicated to support and education of patients, their friends, family, and the public, and support research to improve the diagnosis and treatment and find a cure.

Hawaii Lupus Foundation Description: 1200 College Walk, Suite 114 * Honolulu Call (808) 538.1522 for more information.

Lupus International (www.lupusinternational.com)
The primary function of Lupus International is to eradicate lupus by supporting lupus research, alleviating suffering for lupus patients through patient services and effecting early detection of undiagnosed cases through awareness promotion.
Lupus Canada (www.lupuscanada.org)
Information about Lupus Canada, its Member Organizations, and lupus.
Lupus Society of Alberta (www.lupus.ab.ca)
A member of the Lupus Canada organization serving Alberta Canada. This site has a flash and text version of an animated explanation of lupus.
The Lupus Foundation of Ontario (www.vaxxine.com/lupus)
A member of the Lupus Canada organization serving Ontario Canada.
European Lupus Erythematosus Federation (www.elef.rheumanet.org)
Established in 1989 the Federation includes the following countries: Belgium, Finland, France, Germany, Iceland, Ireland, Israel, Italy, Netherlands, Norway, Portugal, Spain, Sweden, Switzerland and the United Kingdom.
LUPUS UK (www.lupusuk.com)
LUPUS UK is a national charity founded by lupus sufferers to assist those who have lupus and those who support them. Office in Romford, Essex.
North East Lupus Group (www.kitzbuhel.demon.co.uk/lupus)
This site provides details of its activities in north eastern England as well general information on lupus, the charity LUPUS UK, and its various publications and factsheets. A local chapter of the LUPUS UK organization.
West Midlands LUPUS UK (www.westmidlandslupus.co.uk)
Lupus information and support for those living in the West Midlands area of the UK. A local chapter of the LUPUS UK organization.
Lupus Help (http://webrheum.bham.ac.uk/lupus/intro.html)
An information source primarily for the patients visiting our clinic, (The University of Birmingham, England Department of Rheumatology) and for those throughout the UK.
St. Thomas' Lupus Trust Charity (www.lupus.org.uk)
This charity funds lupus research at St Thomas' Hospital in London.
Victorian Lupus Association (www.lupusvic.org.au)
Provides information about The Victorian Lupus Association in Melbourne, Australia.
Lupus Association of New South Wales (www.lupusnsw.org.au)
Lupus information and support for those in New South Wales, Australia.
Lupus Association of Tasmania (www.hotkey.net.au/~lupustas)
Promoting and supporting research designed to discover the cause of, and a cure for, lupus and related auto-immune diseases. Located in Launceston, Tasmania, Australia.
Lupus Association Singapore (home1.pacific.net.sg/~lupusas)
Includes English and Chinese versions, this site supports those with lupus. Office located in Balestier Estate, Singapore.
Korean Lupus Support Group (KLSG)
(http://members.tripod.com/%7EKoreanLupus/)
Lupus information and support from Seoul, Korea.

Lupus on RemedyFind (www.remedyfind.com/hc-lupus.asp)
RemedyFind is a free, unbiased site (not sponsored by drug companies etc.) where individuals can rate the effectiveness of the Lupus treatments they have tried.
We Have Lupus (www.wehavelupus.com)
Lupus support group, with a free message board.
Joanne's Lupus Page (www.uklupus.co.uk)
Contains information about lupus, medications, tests, symptoms, and also has a message board and a chat room.
The Butterfly and The Wolf (http://denim.bbboy.net/thebutterflyandthewolflupusforums)
A friendly and informative site dedicated to the support and education for those suffering from Lupus and/or Fibromyalgia and their families/friends. Come see who we are...read, share, look around, join. Many forums with lots of info and including forums for relaxation and fun, family support center, other site links and more.
Menopause and Black Cohosh Center
(www.menopause-black-cohosh.org)
Contains information on menopause and black cohosh you won't find anywhere else. Also, find valuable information on hormone replacement therapy and the latest menopause research.
Diabetes Directory (www.allofdiabetes.com)
Your one-stop destination having anything to do with diabetes. This Diabetes Directory is designed to help its users find the diabetes information, source, companies, products and services.
Lupus JIE
(www.lupusjie.com)
This lupus site has the most extensive lupus directory. Along with many articles on the disease.
Arthritis and Glucosamine Information Center
(www.glucosamine-arthritis.org)
The Arthritis & Glucosamine Information Center contains quality information on arthritis and glucosamine, the latest glucosamine research, details on arthritis medications and treatments, and tips for effectively managing your pain.
National Institute of Arthritis and Musculoskeletal
and Skin Diseases (www.niams.nih.gov)
General information on lupus as well as a many other diseases.
Lupus Patients Understanding & Support
(www.lupus-support.org.uk)
Award winning site with plenty of lupus information.
Lupus Clinical Overview (www.cerebel.com/lupus)
Clinical look at lupus from a Rheumatologist who specializes in the disease.
Lupus Around The World (www.mtio.com/lupus)
Definitive Lupus information and support. Message board and chat room.
Suite 101.com - Topic Lupus
(www.suite101.com/welcome.cfm/lupus)Suite 101.com is the online writing and publishing community. This lupus site has up to date articles and a bulletin board.
Lupus Resource Center - HealingWell.com
(www.healingwell.com/lupus/)
Community and information resource site to medical news, informative articles, patient stories, community message boards and chat rooms, books, free email, free web pages, newsletters, links to related web sites.
Stories of Lupus (www.storiesoflupus.com)
A series of personal stories about people living with one of this country's most misunderstood diseases, lupus.
The Lupus Den (www.lupusden.com)
Information and recent articles on lupus as well as a forum to help others.
Arthritis Insight (www.arthritisinsight.com)
Easy to read factual information with lots of support from those with another autoimmune disease, arthritis. Includes tips for better living, the latest news and more.
Lupus: Alternative Therapies That Work (www.abouthealinglupus.com)
This site gives a short description of the book Alternative Therapies That Work. In it Sharon Moore shares effective natural healing techniques with other lupus sufferers.
Missouri Arthritis Rehabilitation Research and Training Center
(www.marrtc.org/)
Contains featured articles, news and research on lupus.
Learn Online Course - Living with Lupus - Expert Instruction (http://home.universalclass.com/i/crn/4223.htm)
This online course, Living with Lupus, is designed to help anyone learn to cope with daily living, seek out the best medical advice and work through the anger and grief that come with having lupus. Course fee is $15.00.
Lupus curing program, How To Cure Lupus? (www.curezone.com/diseases/lupus)
CureZone.com is educational not-for-profit web site. This site explains how you can be healthy again through diet, body cleansing and physical activity.
Tips of All Sorts (www.tipsofallsorts.com/lupus.html)
Books, articles and informative links on lupus.
The Lupus Chronicle(http://hometown.aol.com/pubpanda)
Lupus stories from people who live with the disease.
Fibromyalgia Friends & Family (http://fms-forum.com/)
Forum for exchanging information on Lupus, Fibromyalgia, Chronic Fatigue, Arthritis, Multiple Sclerosis, and more.

Brooke's Page (www.brookebowen.com/)
Brooke's personal lupus story that will give you an idea of how severe this disease can be. Brooke has seen almost every lupus symptom you could have.
Monica's Lupus (www.monicaslupus.co.uk)
Dedicated to Monica, who has suffered with Lupus for 30 years. Also includes hints and tips for people who may be embarking on the Lupus journey.
Follow My Lupus (http://followmylupus.com)
Brett's personal lupus story. He provides accurate information on medication for lupus and his lab results.
Living With Lupus (www.cookiebytes.8k.com/LivingWithLupus.html)
A site designed for people living with Lupus or other autoimmune diseases, and their family and friends, to find helpful links, information, support and hope.
Jaynee's Art and Lupus (http://painterjayne.tripod.com/personalpageaboutmylupus.html)
Jaynee's health problems started back in 1973 and getting a proper diagnosis was hard.
Cyndee Miller's Lupus Home Page (www.public.asu.edu/~cyndee74/index.html)
Cyndee was diagnosed with lupus in 1966. Her site details her life from diagnosis to present day and is dedicated to lupus awareness.
For Life - Stories of Lupus (www.morestoriesoflupus.com)
Learn about the six people who were featured on the award-winning documentary "Stories of Lupus".
Jennifer's Lupus Links (www.2access.net/users/leed/lupus)
Lists sites dealing with lupus.
Angelic Angie's Lupus Site (www.angelicangie.com/survivor.htm)
Angela's site provides comfort to those who have lupus.
Lupus: Support and Survival (www.itzarion.com/lupusgroup.html)
Brenda's site provides much information on lupus as well as her own personal story.
KC's Lupus Pages (www.ghg.net/schwerpt/mypage.htm)
Also known as "Kitty Cat", Karen explains her personal lupus story as well as extensive lupus information links and a guest book.
Lupus: My Story and My Links (http://members.tripod.com/~lupus_story/index.html)
Kathie's personal lupus story and her list of lupus related links.
Surviving The Wolf (www.geocities.com/lynmom59/)
Includes a guestbook, stories, prayers and poems about living with lupus.
Annette Leach and Shawna Gilbreath Memorial Web Page (www.geocities.com/lupus_page)
I personally found this site a most touching site dealing with death caused by lupus.
Sandy's Lupus (http://members.tripod.com/~RoseLuvLady/index.html)
Sandy's personal lupus story and lots of good lupus links.
The Lupie Bin (http://members.aol.com/lupiebin/index.htm)
This site has chat rooms, message boards, a guest book and lots of lupus information. Also has information on herbal supplements that need to be avoided by those with lupus and other autoimmune diseases.
Missed Abilities (www.missedabilities.com)
The newest site on lupus. Mary explains her lupus experiences and gives others with the disease a chance to add their story.

Natural Supplements I personally use for Treating my Lupus Symptoms

Modified Citrus Pectin Powder - Citrus pectin is a plant fiber found in the white part of the rind of citrus fruits. Modified citrus pectin (MCP) has been shown to inhibit cancer cell metastasis, lower cholesterol, and remove toxic metals from the body.

Olive Leaf Extract - The extract of the leaf of the olive tree. Supports your body against cellular toxins and bacteria. Its natural protective power cleanses your body of dangerous bacteria while detoxifying cellular toxins. Olive Leaf Extract also contains important anti-oxidants and the same blood pressure-lowering ingredients found in olive oil.

Ease Joint Pain -  Glucosamine is an amino sugar produced from the shells of chitin (shellfish) and is a key component of cartilage. Glucosamine works to stimulate joint function and repair. Rebuilds strong, healthy joint cartilage .Improve joint flexibility. Chondrocytes to clean away old proteoglycans and collagen plus produce new ones. When any one of these elements is missing, cartilage can deteriorate.

Immunoguard + Zinc Lozenges - Guard against disease-including colds and flu-by attacking invading pathogens. Regulates the amount of iron in your bloodstream-and helps starve harmful viruses. This one-of-a-kind formula - extracted from the highest quality sources - contains lactoferrin and colostrum, the natural immune-boosting nutrients found in mother's milk.

The Life Extension Foundation Disease Prevention And Treatment Book

Disease Prevention and Treatment book that makes specific recommendations about combining mainstream therapies with diet, nutrients, hormones and unique medications to provide patients with their best chance of preventing or gaining control over serious medical disorders. The fourth edition of Disease Prevention and Treatment provides over 1,500 pages of concise information about therapies that are documented in the scientific literature, but are not routinely incorporated into clinical medical practice. Many of the recommendations in this latest edition of Disease Prevention and Treatment provide "inside" information about what innovative physicians are doing to prevent and treat the degenerative diseases of aging.