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Lupus Support Groups |
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Lupus Home
Learn The Truth
About Lupus Treatments
I believe that whatever we are challenged by in our
lives, God gave us the mechanism within us to heal it.
Lupus Support Groups
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Butterfly
and the Wolf Description: A mutual
support bulletin board at the Coffeerooms. Friendly
people who understand what you're talking about. |
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The
Lost Lupies Description: Support group
includes a mailing list, chat room, directory, photo
album, and homepage. |
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Lupus
Support Group Southport UK Description:
Details about a Physiotherapist run group for people
with this disease, family and friends at UK
Hospital. Includes a few links and contact details. |
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We
Have Lupus Description: Online support
community for lupus patients and their families. |
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Lupus
Community Description: Message boards and
chat dedicated to sharing information, offering
support, and strategies to better cope. Community
moderated by patient volunteers. |
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Lupus-
The Lupies Support Group Description:
Where patients, family, friends, and those awaiting
their diagnosis, can find others for support and
friendship. |
WEST MIDLANDS LOCAL LUPUS SUPPORT GROUPS - UK
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West Midlands Lupus (SLE) Description:
West Midlands Lupus (SLE) Supporting Lupus patients in
the counties of West Midlands, Warwick, Stafford,
Hereford, Kidderminster, Worcester and Shropshire with
symptoms of lupus |
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Cornwall Lupus Group Web Site Description:
The Cornwall Lupus Group is a regional member of the
main charity Lupus UK.
This website focuses on
building a supportive community for people with Lupus
and their friends and families to show them that
they are not alone. |
North East Lupus Group Homepage
http://www.northeastlupus.org.uk/
details of its activities as well as more general
information on the disease Lupus, the charity Lupus UK,
and its various publications and factsheets
Chapter Locator - Lupus Foundation of America, Inc.
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Chapter Locator
The Lupus Foundation of America (LFA) provides most of its direct services through a nationwide network of chapters, branches and support groups. Chapters conduct programs of public education and information, patient education, professional education, and advocacy. Chapters provide support to people with lupus, their families, and healthcare professionals.
Membership in the LFA is through a local chapter. Members receive Lupus Now®, the LFA's award-winning national magazine, in addition to many other benefits. To learn more about LFA programs and services that may be available in your area - including education programs and support group meetings, or to request a list of physicians - please contact the chapter closest to you.
If there is no chapter located in your state or region, please contact the LFA National Office for assistance:
Lupus Foundation of America, Inc.
2000 L Street, NW Suite 710
Washington, DC 20036
(Office) 202-349-1155
(Health Educator) 202-349-1159
(To request a brochure about lupus) 800-558-0121
Alabama:
| LFA, Georgia Chapter - Atlanta, GA | | (770) 333-5930, Toll Free (800) 800-4LFA (within GA only) | | Website | | Contact Us | | | | LFA, Mid-South Chapter - Nashville, TN | | (615) 298-2273, Toll Free (877) 865-8787 (within AL, KY, and TN) | | Website | | Contact Us |
Alaska:
| LFA, Alaska Chapter - Anchorage, AK | | (907) 338-6332, Toll Free (800) 307-5878 (within AK only) | | Website | | Contact Us |
Arizona:
| LFA, Arizona Chapter - Phoenix, AZ | | (602) 870-7622, Toll Free (866) 365-8787 | | Website | | Contact Us |
Arkansas:
| LFA, Arkansas Chapter - Hot Springs, AR | | (501) 525-9380, Toll Free (800) 294-8878 (within AR only) | |
Website | | Contact Us |
California:
| LFA, Northern California Chapter - Sacramento, CA | | (916) 973-0776, Toll Free (877) 225-8787 | | Website | | Contact Us |
Connecticut:
| LFA, Connecticut Chapter - West Hartford, CT | | (860) 953-0387, Toll Free (800) 699-6967 | | Website | | Contact Us |
Delaware:
| LFA, Delaware Chapter - Wilmington, DE | | (302) 622-8700, Toll Free (800) 880-8686 (within DE only) | | Contact Us |
District of Columbia:
| Lupus Foundation of Greater Washington - Springfield, VA | | 703-644-0058 | | Website | | Contact Us |
Florida
| LFA, Greater Florida Chapter - Clearwater, FL | | (727) 447-7075 (Phone/Fax), Toll Free (800) 684-9276 (within FL only) | | Website | | Contact Us | | | | LFA, Southeast Florida Chapter - Delray Beach, FL | | (561) 279-8606, Toll Free (800) 339-0586 (within SE FL only) | | Website | | Contact Us |
Georgia:
| LFA, Georgia Chapter - Atlanta, GA | | (770) 333-5930, Toll Free (800) 800-4LFA (within GA only) | | Website | | Contact Us |
Hawaii:
| LFA, Hawaii Chapter, Inc. - Honolulu, HI | | (808) 538-1522, Toll Free (866) 97-LUPUS | | Contact Us |
Idaho:
| LFA, Pacific Northwest Chapter - Shoreline, WA | | (206) 546-6785, Toll Free (877) 774-2992 (within WA, OR, and ID only) | | Website | | Contact Us | | | | LFA, Utah Chapter, Inc. - Salt Lake City, UT | | (801) 364-0366, Toll Free (800) 657-6398 (within UT, ID, MT and WY only) | | Website | | Contact Us |
Illinois:
| Lupus Foundation of Illinois - , IL | | 312-542-0002, Toll-free 800-2-LUPUS-2 | | Website | | Contact Us |
Indiana
| LFA, Northwest Indiana Chapter - Portage, IN | | 219-762-6575 (Phone & Fax), Toll Free 866-762-6575 (within IN only) | | Website | | Contact Us |
Iowa:
| LFA, Iowa Chapter - Des Moines, IA | | (515) 279-3048, Toll Free (888) 279-3048 (within IA only) | | Website | | Contact Us |
Kansas:
Kentucky:
| LFA, Mid-South Chapter - Nashville, TN | | (615) 298-2273, Toll Free (877) 865-8787 (within AL, KY, and TN) | | Website | | Contact Us |
Louisiana:
Maryland:
| Lupus Foundation of Greater Washington - Springfield, VA | | 703-644-0058 | | Website | | Contact Us |
Michigan:
| LFA, Northwest Ohio - Findlay, OH | | (419) 423-9313, Toll-free (888) 335-8787 (within Ohio only) | | Website | | Contact Us |
Mississippi:
| LFA, Arkansas Chapter - Hot Springs, AR | | (501) 525-9380, Toll Free (800) 294-8878 (within AR only) | |
Website | | Contact Us |
Missouri:
Montana:
| LFA, Utah Chapter, Inc. - Salt Lake City, UT | | (801) 364-0366, Toll Free (800) 657-6398 (within UT, ID, MT and WY only) | | Website | | Contact Us |
Nebraska:
| LFA, Iowa Chapter - Des Moines, IA | | (515) 279-3048, Toll Free (888) 279-3048 (within IA only) | | Website | | Contact Us |
Nevada:
| LFA, Arizona Chapter - Phoenix, AZ | | (602) 870-7622, Toll Free (866) 365-8787 | | Website | | Contact Us | | | | LFA, Northern California Chapter - Sacramento, CA | | (916) 973-0776, Toll Free (877) 225-8787 | | Website | | Contact Us |
New Hampshire:
| LFA, Vermont Chapter - Waterbury, VT | | (802) 244-5988 | | Contact Us |
New Jersey:
| LFA, Southeastern PA Chapter - Wyncote, PA | | (215) 517-5070, Toll Free in PA (866) 517-5070 | | Website | | Contact Us |
New York:
| LFA, Connecticut Chapter - West Hartford, CT | | (860) 953-0387, Toll Free (800) 699-6967 | | Website | | Contact Us | | | | LFA, Genesee Valley Chapter - Rochester, NY | | (585) 288-2910 | | Contact Us |
New Mexico:
North Carolina:
| LFA, Piedmont Chapter - Charlotte, NC | | (704) 849-8271, (877) 849-8271 | | Website | | Contact Us | | | | LFA, Winston-Triad Lupus Chapter NCLF - Winston Salem, NC | | (336) 768-1493 | | Contact Us |
Ohio
| LFA, Akron Area Chapter - Cuyahoga Falls, OH | | (330) 945-6767, Toll Free (877) 635-8787 | | Contact Us | | | | LFA, Marcy Zitron Chapter - Columbus, OH | | (614)-755-5077 | | Website | | Contact Us | | | | LFA, Greater Cleveland Chapter - Brecksville, OH | | (440) 717-0183, Toll Free (888) 665-8787 | | This chapter also serves the Cincinnati and Dayton areas | | Website | | Contact Us | | | | LFA, Northwest Ohio - Findlay, OH | | (419) 423-9313, Toll-free (888) 335-8787 (within Ohio only) | | Website | | Contact Us |
Oklahoma:
| Oklahoma Lupus Association - Oklahoma City, OK | | (405) 495-8787, Toll Free (800) 725-6445 (within OK only) | | Contact Us |
Oregon:
| LFA, Northern California Chapter - Sacramento, CA | | (916) 973-0776, Toll Free (877) 225-8787 | | Website | | Contact Us | | | | LFA, Pacific Northwest Chapter - Shoreline, WA | | (206) 546-6785, Toll Free (877) 774-2992 (within WA, OR, and ID only) | | Website | | Contact Us |
Pennsylvania:
| LFA, Southeastern PA Chapter - Wyncote, PA | | (215) 517-5070, Toll Free in PA (866) 517-5070 | | Website | | Contact Us |
Rhode Island:
| LFA, Connecticut Chapter - West Hartford, CT | | (860) 953-0387, Toll Free (800) 699-6967 | | Website | | Contact Us |
South Carolina:
| LFA, South Carolina Chapter - Easley, SC | | (864) 269-2887, Toll Free (877) 895-8787 (within SC only) | | Contact Us |
Tennessee:
| LFA, Memphis Area Chapter - Memphis, TN | | (901) 458-5302 | |
Website | | Contact Us | | | | LFA, Mid-South Chapter - Nashville, TN | | (615) 298-2273, Toll Free (877) 865-8787 (within AL, KY, and TN) | | Website | | Contact Us |
Texas:
| LFA, North Texas Chapter - Dallas, TX | | (972) 345-4824, Toll Free (800) 285-2369 | | Website | | Contact Us | | | | LFA, South Central Texas Chapter - San Antonio, TX | | (210) 651-9480, Toll Free (800) 809-3953 (within TX only) | | Website | | Contact Us | | | | LFA, Texas Gulf Coast Chapter - Houston, TX | | (713) 529-0126, Toll Free (800) 458-7870 | | This chapter also serves the El Paso area | | Website | | Contact Us |
Utah:
| LFA, Utah Chapter, Inc. - Salt Lake City, UT | | (801) 364-0366, Toll Free (800) 657-6398 (within UT, ID, MT and WY only) | | Website | | Contact Us |
Virginia:
| LFA, Eastern Virginia Chapter - Virginia Beach, VA | | (757) 490-2793 | | Contact Us | | | | Lupus Foundation of Greater Washington - Springfield, VA | | 703-644-0058 | | Website | | Contact Us |
Vermont:
| LFA, Vermont Chapter - Waterbury, VT | | (802) 244-5988 | | Contact Us |
Washington:
| LFA, Pacific Northwest Chapter - Shoreline, WA | | (206) 546-6785, Toll Free (877) 774-2992 (within WA, OR, and ID only) | | Website | | Contact Us |
Wisconsin:
| LFA, Wisconsin Chapter - Milwaukee, WI | | (414) 443-6400, Toll Free (866) 587-8794 | |
Website | | Contact Us |
Wyoming:
| LFA, Utah Chapter, Inc. - Salt Lake City, UT | | (801) 364-0366, Toll Free (800) 657-6398 (within UT, ID, MT and WY only) | | Website | | Contact Us |
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| © 2005 Lupus Foundation of America,
Inc. |
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I am a firm
believer in Omega 3 Fish oils for minimizing my Lupus
symptoms, and, although I do take fish oil supplements
daily, I also switched to a diet of mostly fish only
about three years ago.
The results are fascinating -- and I saw (and am still
seeing!) improvements in my quality of life, much less
pain, inflammation and fatigue, which I find, are some
of the most debilitating symptoms of lupus.
I went from being severely affected by Lupus in my daily
life to actually joining the gym and noticing a huge
difference in what I could do, simply by increasing my
intake of fatty fish such as
salmon,
tuna, mackerel,
lake trout, herring, sardines. ect.
Learn more ...
Since I don't get outside much ( especially not in the
summer sun) I was fortunate enough to find an
online
store where I order all of my fresh fish requirements,
monthly. Whispy.com has now partnered with
Mike Mondello's SeaBear Smokehouse
in order to educate our Internet audience about Omega 3
fish oils and the great benefits and to provide the
best
fresh seafood in the US at special
discount prices.
I've
also posted several of my favorite
seafood recipes in
our
Community Recipe Collections.
There you will find free recipes such
as
Seared Ahi Tuna,
Broiled Salmon Steaks With Mustard Sauce
and
Basil Pesto Baked Halibut, just
to name a few!
If you are not able to get enough Omega 3 in your diet
through fish alone, you may want to discuss the
possibility of supplementing your diet with a quality
Omega 3 soft gel with your local health care
professional.
Over the past 40 years, an increasing number of
physiological functions have been attributed to omega-3
fatty acids, including movement of calcium and other
substances into and out of cells, relaxation and
contraction of muscles, inhibition and promotion of
clotting, regulation of secretion of substances that
include digestive enzymes and hormones, control of
fertility, cell division, and growth. In addition,
omega-3 fatty acids may play an important role in brain
development and function. Some evidence has suggested
that omega-3 fatty acids in the diet may protect against
heart attack and stroke, as well as certain inflammatory
diseases like arthritis, lupus, and asthma. The major
dietary sources of omega-3 fatty acids in the U.S.
population are fish, fish oil, vegetable oils
(principally canola and soybean), walnuts, wheat germ,
and some dietary supplements.
Natural Supplements I personally use for
Treating my Lupus Symptoms
Immutol is the most proven,
most effective natural immunity enhancer available
anywhere.
Immutol activates specific immune cells called
macrophages that are the front line of defense against
invading microbes, thereby enhancing your immune
system's natural ability to defend against pathogens.
Immutol is not a drug, vitamin, herb, or mineral, yet it
can activate your entire immune system more fully and
safely than any known substance. The only ingredient
contained in IMMUTOLŪ is highly purified Norwegian
Beta-1,3/1,6-Glucan (NBG). For more information
regarding product history and research, please visit
www.immunocorp.com .
Modified Citrus Pectin Powder - Citrus pectin is
a plant fiber found in the white part of the rind of
citrus fruits. Modified citrus pectin
(MCP) has been shown to inhibit cancer cell metastasis,
lower cholesterol, and remove toxic metals from the
body.
Olive Leaf Extract -
The extract of the leaf of the olive tree.
Supports your body against cellular toxins and bacteria.
Its natural protective power cleanses your body
of dangerous bacteria while detoxifying cellular toxins.
Olive Leaf Extract also contains important anti-oxidants
and the same blood pressure-lowering ingredients found
in olive oil.
Ease Joint Pain -
Glucosamine is an amino
sugar produced from the shells of chitin (shellfish) and
is a key component of cartilage. Glucosamine works to
stimulate joint function and repair.
Rebuilds strong, healthy joint cartilage .Improve joint
flexibility. Chondrocytes to clean away old
proteoglycans and collagen plus produce new ones.
When any one of these elements is missing,
cartilage can deteriorate.
Immunoguard + Zinc Lozenges
- Guard against disease-including
colds and flu-by attacking invading pathogens. Regulates
the amount of iron in your bloodstream-and helps starve
harmful viruses. This one-of-a-kind formula -
extracted from the highest quality sources - contains
lactoferrin and colostrum, the natural immune-boosting
nutrients found in mother's milk.
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Daniel J. Wallace
Endorsed by The Lupus Foundation of America. Dr.
Wallace, a world-renowned expert on lupus, explains
what the disease is, why it is so difficult to
diagnose, and how patients can ease the more
difficult manifestations.
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Mary,M.D. Horowitz, et al
Describes what a patient should expect and provides
explaination of some standard lab values.
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